mixed news

Today Sean had an appointment with NIH. The news we received was mixed. On the less sunny side of things, there is more growth in the usual spot in the brain stem and there is a new, unclaimed spot on the cerebellum...which leads to the good news, strangely enough. The good news is that the doctors may be able to perform a biopsy because the new spot is close enough to the surface. This is something that Sean was never able to have before so all of his diagnosis and treatment to this point has been almost guesswork. This biopsy could open many doors to new treatments and a lot more information about what's actually going on in that head of his. So his docs at NIH will be reviewing the case with the top two neurosurgeons next week and we should know mid-week if they will be able to perform the biopsy and when. We are definitely looking forward to that.