Today has truly been a great day, and evidence that prayers do not go unanswered! Sean had a great day, even ate dinner on his own, holding his own fork, which sounds so minor, but really is an accomplishment. We were blessed to have our dear friends David and Rachel Lys come to visit today and, since they are both in the physical therapy field, were able to spend about two hours giving us exercises that we can do together and some that Sean can do on his own. It was so wonderful to see them and their beautiful baby Brighton and we felt so excited to be getting some help that is really useful.
Prudy and Brian worked together to find a physical therapist today and contacted a local VA office, where we spoke with a very nice gentleman who is going to put us in touch with a physical therapist and, if necessary, transportation, and a counselor. Sean rates a lot of free services because he is considered 100% disabled through the VA.
And, finally, we spoke to Dr Raj, Sean's oncologist, this evening and she is calling in the prescription for Tamoxifen so we can start it tomorrow. This is a drug that is primarily used for breast cancer but has been used to treat other types of cancer also. This is a drug that we have not tried yet and are very hopeful about. One of the major side effects of this drug is blood clots and with Sean's level of activity and being on testosterone, which also contribute to blood clots, Dr Raj has decided to also put him on a minor blood thinner, just in case. So he is thrilled about this.
We did hear from our nurse practitioner at NIH this morning and she said that she received the radiologist's report on last week's MRI and that the results "are not good." We will receive this report tomorrow. Regardless, we kinda expected bad news and we've been preparing for that, so it was no news that we were not already expecting.
Overall, we are so grateful for all of the positive thoughts and prayers that have been sent our way and we are incredibly blessed people to have so much support and love around us on a daily basis. We are moving forward...
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5 comments:
So glad to hear that you are getting this all worked out. Then you can put your concentration back on Sean and getting him moving. If you need us give us a call. Mom
Stay strong....what the NIH considers "..not great news" doesn't necessarily mean it's all bad. Their prime consideration is the Avastin clinical trial and Sean's exclusion or inclusion as a candidate. My fingers are crossed that there's no significant change in size of the tumor at the principle site. To my mind....that would be great news.
Looking forward to seeing you both tomorrow. Hang in there. Love you lots.
Hi Steph! Kristen here- I just found out from the K-team that you had a blog so I got on here and wanted to say hello and tell you how amazing you both are. I'm glad to see your spirits are high. I am praying for you and Sean. It's not the same at Church Creek without you. I've been standing in for Dawn for the past month while she is resting for a bit longer. Have fun at dinner tonight! I would love to get together with you too as well. If you ever need someone to talk to or to visit just let me know. keep in touch....kristenlynn70@hotmail.com-- Talk to you soon!-- You're in my thoughts and prayers.
I am so happy to hear all of this news! I hope to come by this weekend. I will call you to work it out. Love you guys!
Hey steph,
So great seeing you last night, it was big time fun! Let me know if you need anything, I have lots of big carrots if you run out :) Becky
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